The situation
The lymph node ultrasound 2 weeks ago revealed abnormal nodules, and Dr. Wexler (the new endocrinologist) wanted me to have them biopsied before splitting open my whole neck. Today was my lymph node biopsy (procedure was a fine needle aspiration, just like the thyroid biopsy a month ago).Bad news
Abnormal nodules in my lymph nodes were confirmed malignant, and now my neck is sore from the procedure. Last biopsy left me sore for like 10 days...I'm hoping this one won't be as long.Gory details about my unpleasant afternoon
I didn't get into the procedure room at Washington Hospital Center until 1 hour 15 minutes after my appointment time, including like 20 minutes half-dressed in a 2x2 foot changing room, and then was left in the procedure room for another 10 or 15 minutes by myself after initial preparation (waiting for pathologist apparently). While waiting I encountered not one, but two bloody pieces of gauze on the floor, in different parts of the building (I think both dropped by the same guy). And this place was in the basement, so no cell reception, leaving me unable to coordinate help picking up kids from school/bus now that I was going to be late. Procedure itself went fine. The radiologist (the one sticking me with the needle) kept saying, 'beautiful! isn't this beautiful?' and made the tech take more ultrasound pictures (and maybe even a movie??) of my neck with needle inserted. She seemed quite pleased with her needle-inserting prowess. It didn't feel particularly beautiful to me.Having my appointment go so late (3pm) meant not only that I was later than I expected getting out, but also that I was now in rush hour traffic trying to get out of DC, and I didn't really know where I was going. Lucy's preschool has after-care, and they've been really understanding and flexible about keeping her even though it's not something we normally do, so I wasn't worried about her. But it took a while to get in touch with Andrea to make sure she could get Rowan from the bus, so that added to the stress. AND like 30 minutes (and 1.5 miles) after I left the hospital the ultrasound tech called to say I was going to need to come back next week because they needed another sample from me(!!!). I couldn't believe it. At some point, close to 4pm, I realized I was beyond late and traffic wasn't moving and I happened to be close to Nate's work. So I called him and picked him up. This was fabulous because it meant: #1 I didn't have to drive anymore (it hurt to turn my head right, not so safe), and #2 now we could take I-66 (HOV).
Anyway, after we finally got home I talked to Dr. Wexler and he confirmed that both tumors they biopsied tested positive for thyroid cancer. The call I got from the tech was because they forgot to do the needle rinse (extra test for cancer in case looking at slides was inconclusive), but turns out the slides were conclusive, so at least I don't have to go back again Monday. I do need CT scan at some point to see if it's spread to lungs too, but it's not urgent, and I can do that at Virginia Hospital Center (MUCH more convenient). NOTE: even if it has spread to lungs, it's still thyroid cancer, not lung cancer. Prognosis would be worse if it's spread to lungs, but I'm told it's still very treatable. My neck scar is going to be wicked though--I think it'll go nearly from my left ear all the way across the front of my throat. Rowan is going to flip out.
First impression of radiology facility at WHC: Not so good.
Jenny, we think of you very often, here in Paris.
ReplyDeleteAnd remember, in "The Good, the Bad and the Ugly" (Sergio Leone's western), The Good comes out as the winner!
Jean-Loup
What a horrible appointment. So stressful--all that waiting! I have often wondered why they make you wait with your clothes off. It takes less than 10 seconds to fully undress. I would much rather wait with my clothes on and just take them off when the doctor shows up.
ReplyDeleteImagine the stories you will be able to tell about your scar! Kids believe anything!
Good luck scheduling the surgery. As always, tell me if you need anything!
Wow, Jenny, what a very stressful appointment in an already stressful situation. That is crazy. I'm glad, though, that you do not have to go back there, although for a not-so-good reason. I will light candles for both NO spread to the lungs, and for an easy scheduling of surgery.
ReplyDeleteAs for the scar, you could wear a scarf and then Rowan might ask, "Why do you wear a [scarf]? Were you burned by acid or something?" And then you could reply, "Oh no. It's just they're terribly comfortable. I think everyone will be wearing them in the future.” (Princess Bride reference! :) )
Much love and hugs to you, Nate, and the girls!
You were treated poorly by the medical system. It makes me angry. The radiologist who said "Isn't it beautiful" reminds me of my surgeon who said "what a nice job" as he admired the scar where he had removed my breast. What a total disconnect. Thank you for sharing. It's good that you are writing this down.
ReplyDeleteSending love
Ada
I'm really sorry to hear this, Jenny, but I've heard only good things about Dr. Wexler, so I am happy you've met with him. Also, please let me know if you ever need anything, I'm super close and am willing to help out with whatever is needed! Also, invest in a ton of vitamin E for your scar and massage it into scar when your doctor says you can do it. It totally helps with minimizing the scar tissue (my friend had got a Harry Potter-type cut on his forehead like 5 years ago, and now you can barely tell (unless you know what you're looking for!)).
ReplyDeleteThank you Jenny for sharing your news. I'm glad that bad day ended several days ago, now.
ReplyDeleteDear Jenny, I am just now tuning into your blog and so sorry to hear about this fiasco with the biopsy. What a bummer. Hope the rest of your contacts with the medical system go much better, and will continue to keep you and Nate and the girls in my thoughts and prayers, pretty much constantly. Love you, Peggy
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